A Process Design for Rare Diseases Patients in Turkey

Hatice Camgöz Akdağ; Gül Beyza Özuzcan; Dilay Durucali

doi:10.1007/978-3-030-31343-2_9

A Process Design for Rare Diseases Patients in Turkey

Hatice Camgöz Akdağ
, Gül Beyza Özuzcan^*
, Dilay Durucali

^*Corresponding author for this work

Department of Management Engineering

Istanbul Technical University

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

Abstract

This paper is conducted to establish a better pathway for rare disease patients and doctors especially in Turkey. Through the project, contacts made with numerous rare disease patients, geneticists who expertise in this field, academicians, students of medicine department, and many more. After collection and evaluation of the raw data, the analysis is made to implement it for real life improvement scenarios. The analysis technique of this project was value stream mapping, which is broadly used to find the bottlenecks and slacks in the healthcare sector. Afterwards, final suggestions are explained on the last section. To conclude, the patient flow analysis for rare disease patients and especially the detailed flow for cystic fibrosis patients presented that a comprehensive strategy should be designed and plans should be made for rare diseases case in Turkey. This project was the first step for this mission, and also, the first project focusing on the rare diseases field from an engineering perspective.

Original language	English
Title of host publication	Proceedings of the International Symposium for Production Research 2019
Editors	Muhammed Nafis Osman Zahid, Radhiyah Abd. Aziz, Ahmad Razlan Yusoff, Nafrizuan Mat Yahya, Fazilah Abdul Aziz, Mohd Yazid Abu, Numan M. Durakbasa, M. Günes Gençyilmaz
Publisher	Springer Science and Business Media Deutschland GmbH
Pages	107-118
Number of pages	12
ISBN (Print)	9783030313425, 9789811509490
DOIs	https://doi.org/10.1007/978-3-030-31343-2_9
Publication status	Published - 2020
Event	19th International Symposium for Production Research, ISPR 2019 - Vienna, Austria Duration: 28 Aug 2019 → 30 Aug 2019

Publication series

Name	Lecture Notes in Mechanical Engineering
ISSN (Print)	2195-4356
ISSN (Electronic)	2195-4364

Conference

Conference	19th International Symposium for Production Research, ISPR 2019
Country/Territory	Austria
City	Vienna
Period	28/08/19 → 30/08/19

Bibliographical note

Publisher Copyright:
© 2020, Springer Nature Switzerland AG.

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Cystic fibrosis
Engineering analysis method
Patient flow
Rare diseases
Value stream mapping

Access to Document

10.1007/978-3-030-31343-2_9

Cite this

Akdağ, H. C., Özuzcan, G. B., & Durucali, D. (2020). A Process Design for Rare Diseases Patients in Turkey. In M. N. Osman Zahid, R. Abd. Aziz, A. R. Yusoff, N. Mat Yahya, F. Abdul Aziz, M. Yazid Abu, N. M. Durakbasa, & M. G. Gençyilmaz (Eds.), Proceedings of the International Symposium for Production Research 2019 (pp. 107-118). (Lecture Notes in Mechanical Engineering). Springer Science and Business Media Deutschland GmbH. https://doi.org/10.1007/978-3-030-31343-2_9

Akdağ, Hatice Camgöz ; Özuzcan, Gül Beyza ; Durucali, Dilay. / A Process Design for Rare Diseases Patients in Turkey. Proceedings of the International Symposium for Production Research 2019. editor / Muhammed Nafis Osman Zahid ; Radhiyah Abd. Aziz ; Ahmad Razlan Yusoff ; Nafrizuan Mat Yahya ; Fazilah Abdul Aziz ; Mohd Yazid Abu ; Numan M. Durakbasa ; M. Günes Gençyilmaz. Springer Science and Business Media Deutschland GmbH, 2020. pp. 107-118 (Lecture Notes in Mechanical Engineering).

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title = "A Process Design for Rare Diseases Patients in Turkey",

abstract = "This paper is conducted to establish a better pathway for rare disease patients and doctors especially in Turkey. Through the project, contacts made with numerous rare disease patients, geneticists who expertise in this field, academicians, students of medicine department, and many more. After collection and evaluation of the raw data, the analysis is made to implement it for real life improvement scenarios. The analysis technique of this project was value stream mapping, which is broadly used to find the bottlenecks and slacks in the healthcare sector. Afterwards, final suggestions are explained on the last section. To conclude, the patient flow analysis for rare disease patients and especially the detailed flow for cystic fibrosis patients presented that a comprehensive strategy should be designed and plans should be made for rare diseases case in Turkey. This project was the first step for this mission, and also, the first project focusing on the rare diseases field from an engineering perspective.",

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author = "Akdağ, \{Hatice Camg{\"o}z\} and {\"O}zuzcan, \{G{\"u}l Beyza\} and Dilay Durucali",

note = "Publisher Copyright: {\textcopyright} 2020, Springer Nature Switzerland AG.; 19th International Symposium for Production Research, ISPR 2019 ; Conference date: 28-08-2019 Through 30-08-2019",

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Akdağ, HC, Özuzcan, GB & Durucali, D 2020, A Process Design for Rare Diseases Patients in Turkey. in MN Osman Zahid, R Abd. Aziz, AR Yusoff, N Mat Yahya, F Abdul Aziz, M Yazid Abu, NM Durakbasa & MG Gençyilmaz (eds), Proceedings of the International Symposium for Production Research 2019. Lecture Notes in Mechanical Engineering, Springer Science and Business Media Deutschland GmbH, pp. 107-118, 19th International Symposium for Production Research, ISPR 2019, Vienna, Austria, 28/08/19. https://doi.org/10.1007/978-3-030-31343-2_9

A Process Design for Rare Diseases Patients in Turkey. / Akdağ, Hatice Camgöz; Özuzcan, Gül Beyza; Durucali, Dilay.
Proceedings of the International Symposium for Production Research 2019. ed. / Muhammed Nafis Osman Zahid; Radhiyah Abd. Aziz; Ahmad Razlan Yusoff; Nafrizuan Mat Yahya; Fazilah Abdul Aziz; Mohd Yazid Abu; Numan M. Durakbasa; M. Günes Gençyilmaz. Springer Science and Business Media Deutschland GmbH, 2020. p. 107-118 (Lecture Notes in Mechanical Engineering).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

TY - GEN

T1 - A Process Design for Rare Diseases Patients in Turkey

AU - Akdağ, Hatice Camgöz

AU - Özuzcan, Gül Beyza

AU - Durucali, Dilay

PY - 2020

Y1 - 2020

N2 - This paper is conducted to establish a better pathway for rare disease patients and doctors especially in Turkey. Through the project, contacts made with numerous rare disease patients, geneticists who expertise in this field, academicians, students of medicine department, and many more. After collection and evaluation of the raw data, the analysis is made to implement it for real life improvement scenarios. The analysis technique of this project was value stream mapping, which is broadly used to find the bottlenecks and slacks in the healthcare sector. Afterwards, final suggestions are explained on the last section. To conclude, the patient flow analysis for rare disease patients and especially the detailed flow for cystic fibrosis patients presented that a comprehensive strategy should be designed and plans should be made for rare diseases case in Turkey. This project was the first step for this mission, and also, the first project focusing on the rare diseases field from an engineering perspective.

AB - This paper is conducted to establish a better pathway for rare disease patients and doctors especially in Turkey. Through the project, contacts made with numerous rare disease patients, geneticists who expertise in this field, academicians, students of medicine department, and many more. After collection and evaluation of the raw data, the analysis is made to implement it for real life improvement scenarios. The analysis technique of this project was value stream mapping, which is broadly used to find the bottlenecks and slacks in the healthcare sector. Afterwards, final suggestions are explained on the last section. To conclude, the patient flow analysis for rare disease patients and especially the detailed flow for cystic fibrosis patients presented that a comprehensive strategy should be designed and plans should be made for rare diseases case in Turkey. This project was the first step for this mission, and also, the first project focusing on the rare diseases field from an engineering perspective.

KW - Cystic fibrosis

KW - Engineering analysis method

KW - Patient flow

KW - Rare diseases

KW - Value stream mapping

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U2 - 10.1007/978-3-030-31343-2_9

DO - 10.1007/978-3-030-31343-2_9

M3 - Conference contribution

AN - SCOPUS:85076217374

SN - 9783030313425

SN - 9789811509490

T3 - Lecture Notes in Mechanical Engineering

SP - 107

EP - 118

BT - Proceedings of the International Symposium for Production Research 2019

A2 - Osman Zahid, Muhammed Nafis

A2 - Abd. Aziz, Radhiyah

A2 - Yusoff, Ahmad Razlan

A2 - Mat Yahya, Nafrizuan

A2 - Abdul Aziz, Fazilah

A2 - Yazid Abu, Mohd

A2 - Durakbasa, Numan M.

A2 - Gençyilmaz, M. Günes

PB - Springer Science and Business Media Deutschland GmbH

T2 - 19th International Symposium for Production Research, ISPR 2019

Y2 - 28 August 2019 through 30 August 2019

ER -

Akdağ HC, Özuzcan GB, Durucali D. A Process Design for Rare Diseases Patients in Turkey. In Osman Zahid MN, Abd. Aziz R, Yusoff AR, Mat Yahya N, Abdul Aziz F, Yazid Abu M, Durakbasa NM, Gençyilmaz MG, editors, Proceedings of the International Symposium for Production Research 2019. Springer Science and Business Media Deutschland GmbH. 2020. p. 107-118. (Lecture Notes in Mechanical Engineering). doi: 10.1007/978-3-030-31343-2_9

A Process Design for Rare Diseases Patients in Turkey

Abstract

Publication series

Conference

Bibliographical note

UN SDGs

Keywords

Access to Document

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